年輕女性癌癥幸存者關(guān)心他們將來的生育和養(yǎng)育子女的選項(xiàng),并希望更好的信息和指導(dǎo)早期, 根據(jù)由Jessica Gorman和她的團(tuán)隊(duì)在美國加州大學(xué)的一個(gè)新的研究. 他們的論文, 這對(duì)青少年的幸存者深入的信息’ 航行決定對(duì)生育和養(yǎng)育子女的經(jīng)驗(yàn), 在施普林格的是在網(wǎng)上公布中國癌癥幸存者.
有更多的青少年和年輕成年人尚存他們的疾病, 造成大量和越來越多的育齡女性癌癥幸存者. 年輕的癌癥幸存者不太可能比非癌癥幸存者有親生子女, 主要是由于對(duì)未來生育率的癌癥治療方法的效果. 然而, 許多人不知道他們的待遇,,對(duì)他們的生育能力的影響, 了解這些年輕女士’ 關(guān)注是對(duì)制定有效的第一步, 有針對(duì)性的干預(yù)措施,,將滿足那些想成為父母的需要.
研究人員探索的生育和養(yǎng)育子女的關(guān)注 22 美國女性癌癥幸存者, 年齡介乎 18 和 34 年. 年輕女性, 招募診所和社區(qū)為基礎(chǔ)的服務(wù)項(xiàng)目, 參加焦點(diǎn)小組.
作者認(rèn)為,從六個(gè)討論主題:
1.一個(gè)充滿希望的,,但擔(dān)心生育和養(yǎng)育子女的方法: 雖然與會(huì)者表示希望有一個(gè)家庭, 許多人也感到焦慮,,他們將不能有自己的孩子.
2.缺乏選擇或超過控制生育的挫折感: 即使年輕婦女承認(rèn),在診斷時(shí)討論關(guān)于生育,,已勢(shì)不可擋, 他們強(qiáng)烈地感覺到,,他們 (或他們的父母) 應(yīng)該已經(jīng)告訴我都對(duì)他們的生育能力治療的影響, 治療前可用的選項(xiàng)保留生育如. 冷凍卵子.
3.年輕的幸存者,希望他們的生育能力的信息: 數(shù)名婦女遺憾地報(bào)告,,他們的醫(yī)生沒有跟他們商量有關(guān)生育,,他們認(rèn)為,一個(gè)年輕的女子進(jìn)入青春期后,,隨時(shí)有這個(gè)討論.
4.年輕的幸存者要更好地生存照顧的連續(xù)性: 許多人感到沮喪與多個(gè)醫(yī)療機(jī)構(gòu)之間的協(xié)調(diào)性差的護(hù)理, 包括有關(guān)生育和計(jì)劃懷孕的的護(hù)理. 他們認(rèn)為,,每個(gè)醫(yī)生對(duì)他或她的專科問題, 而不是更大的圖片.
5.癌癥的診斷和相關(guān)的生育問題引入關(guān)系的挑戰(zhàn): 年輕女性關(guān)注這兩者關(guān)系的早期階段,,在一個(gè)更??穩(wěn)定的的關(guān)系.
6.關(guān)于父母的決定是復(fù)雜: 參加上市兩種情緒 (擔(dān)心他們的個(gè)人健康和壽命, 以及擔(dān)心其潛在的孩子的健康) 和實(shí)際 (主要是金融) 父母障礙.
戈?duì)柭蛨F(tuán)隊(duì)結(jié)束; “它為研究人員和臨床醫(yī)生的關(guān)鍵是要理解年輕的女性幸存者’ 有關(guān)生育和養(yǎng)育子女的關(guān)注,,以便充分地解決這些問題. 我們的研究結(jié)果表明,這些年輕婦女將受益于改進(jìn)信息對(duì)他們的選擇, 通過他們的醫(yī)療服務(wù)提供者發(fā)起的討論, 更好地協(xié)調(diào)在生存照顧, 和指導(dǎo),,并在航行中出現(xiàn)的問題考慮生育和未來的父母時(shí),,雙方感情和實(shí)際的支持。”(生物谷Bioon.com)
doi:10.1007/s11764-011-0211-9
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How do you feel about fertility and parenthood? The voices of young female cancer survivors
Jessica R. Gorman, Samantha Bailey, John P. Pierce and H. Irene Su
Purpose
Young adult cancer survivors are often unaware of their fertility status and uninformed regarding their fertility and fertility preservation options. This qualitative research study explores the fertility and parenthood concerns of reproductive-age female cancer survivors and how they make parenthood decisions.
Methods
Population- and clinic-based recruitment methods were used to identify a diverse group of survivors between the ages of 18 and 34 years. Our final sample size included 22 participants who attended one of seven focus groups. We used cross-case, inductive analysis to identify themes.
Results
The following main themes were identified: (1) A hopeful but worried approach to fertility and parenthood, (2) Frustration with a lack of choice or control over fertility, (3) Young survivors want information about their fertility, (4) Young survivors want better continuity of care in survivorship, (5) Cancer diagnosis and related fertility problems introduce relationship challenges, and (6) Decisions about parenthood are complicated.
Conclusions
The diverse group of young cancer survivors in this study identified several common needs and concerns regarding fertility and parenthood. This study illustrates that young survivors could benefit from improved information regarding their fertility and parenthood options throughout survivorship, better coordination of medical care, and support navigating many emotional and practical issues that arise when considering their reproductive and parenthood options.